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My Special Heart

Hmm I have been thinking how I should start this post because it’s kinda personal and I don’t really see the point of sharing it with everyone. Trust me, it’s quite irritating when someone comes to you and say “you will be fine” like they know how it feels like. I know they are just trying to be nice and caring but I don’t think it will make me feel any better. It actually makes me feel worse =____=

I’ve always been a happy go person, I don’t like it when people around me give me very negative thoughts. My favorite quote is always “How bad can it be??” Hehehehe well this quote don’t really apply in my current situation tho.

I’m diagnosed with a very rare and special disease. It’s called Supraventicular Tachycardia (SVT) the name is super technical, so technical until Im having a hard time remembering it so I just call it heart beats whenever I get it.

Supraventricular Tachycardia (SVT) is the name given to an abnormality of heart rhythm, characterised by a fast heartbeat. The symptoms are dizziness, chest pain, light-headedness, tiredness and super fast heart beats (pulse 140-200 per minute or even faster).

How do I know I’m having SVT? Ppl ask me this question whenever I tell them I’m diagnosed with SVT. My elder sister which is a DR did a ECG for me because I told her my heartbeats seems to be different.

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This is the first ECG I did and straight away she suggested me to see a cardiologist. As u can see the gap between each beat is different. For normal heartbeats, the gap between each beat should be exactly the same but mine is not.

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Went to the cardiologist to get a proper diagnosis, and I had to wear a heart holter. It will monitor my heartbeat for 24 hours. I was making fun of myself when I was wearing it. I looked like Ironman hahahaha. Anyway, tats how they found out I have SVT.

It actually feels like a panic attack. To those who haven’t had a panic attack before the feeling is like u finished a bottle of liqour or alcohol and ur pulse is like having a little private disco in ur body.

Yup, I feel like that whenever I get the attack. There isn’t a specific time or activity that I do that will cause it. It will just come and go any time and any where. The fastest heartbeats I ever gotten was 166 per minute! Sometimes it lasts for 5 -10 min, sometimes it lasts for 20-30 min, it really depends.

I have tried a lot of ways to calm it down but they don’t seem to be working. I can’t focus and I have no strength, the only way is to move around/walk around till it stops. It’s very very irritating. Somehow I feel that it really affects my life! For example, I get the attack at work and I have to stop working and keep shaking my legs or hands so I don’t have to walk around hahaha. It’s like pretending to be busy la

I can’t drink alcohol, tea, coffee or anything that contains caffeine because it will make it worse. How to live without Coke and alcohol u tell me? Hahahaha cannot go to Zouk edi lo!

So I have been on medication for a few months now. Basically this medicine helps to slow down/control my heartbeat. At first the medicine worked! It worked for a few months then it decided to just stop working! This is when frustration joins the party =(

My heartbeats got worse, and I started to get the heartbeats more frequent and when I get it my hands get numb. I have no strength and I can’t focus.

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I went to get a second opinion and the new doctor prescribed me a new medicine. This new medicine was supposed to be the most effective medicine and it’s more expensive T___T one month’s dose cost me RM400 but NOPE! I still get the heartbeats and this time I will get dizzy when I get the heartbeats! Super frustrating I tell u!! To me, none of the medicine works!!! HOW ISSIT POSSIBLE!!!

I’m really fed up with taking medicine and trying new medicine because new medicine seems to give me headache, nausea or gastric. Siennnnnnnnnn

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Went back to the doctor again and he suggested that I should give another medicine a try before deciding on doing a procedure. I was like whatever la if this doesn’t work again I won’t try any medicine anymore! I will go straight for the procedure.

So I’m trying a third medication now and I hope it works! *fingers crossed* because this medicine is way cheaper and I won’t have to spend RM30k- RM40k for the procedure. The procedure is called “Cardiac Ablation” and is another complicated thing to explain, so I’ll ignore it until the day I decide to do it. God bless me and the medication for my heart.

I don’t know wats the point of this post. So sorry for the long windedness and the wordy post hahaha. I might have bored the hell out of u hehehe. Thanks for reading and love ur heart everyone! =)

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17 Comments

  • Reply Aine

    Hey bobo, have u tried valsalva maneuver every time u got the attack? Your sis can explain better to u how it’s done and usually it’s the first line treatment doctors try. But if u have recurrent attacks it might not work :/ good luck to u!!

    November 6, 2013 at 1:29 am
  • Reply Lihlih

    Hello Bobo, stay positive like you used to be. Although the “how bad it can be” quote don’t really apply but you have a lot people who support/ love/sayang you all the way and of course they will pray the best for you 🙂 so be happy la.. Maybe you can drink your coke soon!加油加油

    November 6, 2013 at 2:01 am
  • Reply Roveena Zoe

    hi Bobo, I know how u feel as I’m diagnosed with SVT too. It really affects my daily life too although doctor said it wont affect my life much, which I don’t think so T.TnMaybe u can try to ask your doctor about the medicine named Inderal because for Inderal works for me *touchwood*.nAll the best, take care 🙂

    November 6, 2013 at 8:24 am
  • Reply Roveena Zoe

    hi Bobo, I know how u feel as I’m diagnosed with SVT too. It really affects my daily life too although doctor said it wont affect my life much, which I don’t think so T.TnMaybe u can try to ask your doctor about the medicine named Inderal because for Inderal works for me *touchwood*.nAll the best, take care 🙂

    November 6, 2013 at 8:24 am
  • Reply Wynnce

    Sad to know this Bobo. My bf just recovered from a heart attack bypass surgery (he was later diagnosed with genetic heart disease). Maybe you can look for Dr Yoon from Sunway Medical Center? Her profile: http://sunway.com.my/sunmed/ourdoctor_list.aspx?search=Cardiology

    November 6, 2013 at 4:09 pm
  • Reply melissa1010

    So you’re iron man !!!

    November 7, 2013 at 12:39 am
  • Reply shihui

    hope you’ll get well soon! 🙂

    November 8, 2013 at 2:33 pm
  • Reply lynette

    Hi Bobo. I have this heart palpitation too since high school but I still drink caffeine and alcohol like nobody’s business lol. Medication wouldn’t help at all. The longest palpitation I had was for a day :/ which was few years ago. One basic thing that helps is the second the palpitation starts, calm down and take few deep breaths/Press your nose and stop breathing for few seconds. The palpitation will stop by itself most of the time. I find that the attack comes rarely now, so the key is probably to keep calm! 🙂 all the best

    November 9, 2013 at 7:10 am
  • Reply TenshiChn

    Hi Bobo, I hope you get well soon enough. It’s quite worrisome when medication does not work. I actually thought you have to stay calm when it came but it turn out the other way around, that you have to get your body active.. good to know that your sister is able to help you out :)n

    November 12, 2013 at 1:14 am
  • Reply melodybread

    take care iron man, go Bobo! =)

    November 13, 2013 at 6:36 pm
  • Reply Anonymous

    I don’t know what to say to make you feel better but I’ll pray that you’ll get well soon.

    November 14, 2013 at 3:34 pm
  • Reply Bobostephanie

    ok I will ask her then! thanks

    November 14, 2013 at 4:43 pm
  • Reply Bobostephanie

    hehe I have tried a few med and none of them work! is ok I have deicded to go with the procedure! thanks

    November 14, 2013 at 4:44 pm
  • Reply lilien

    my sister actually had the same condition diagnosed at 3, she went for a procedure(can’t remember the exact name) twice and it only really was successful at the second attempt in Singapore General Hospital. otherwise, before the successful procedure, she took propanolol.was cured by her teenage years (:

    November 18, 2013 at 11:15 pm
  • Reply Michelle Tan

    Hi bobo. You experienced panic attack before? How do you overcome that? You look like you are dealing with it really good. Im currently always under the anxiety that the panic attack will occur again and its affecting my life. . Mind sharing some tips?

    February 16, 2014 at 6:43 pm
  • Reply yhan02ph

    Hi, will have a Holter as well due to SVT. Nice to know that someone has it but able to deal with it.

    January 25, 2015 at 9:41 pm
  • Reply Journey To Wellness | BOBOSTEPHANIE.COM

    […] we rewind back to 2013, I blogged about my “special” heart (http://www.bobostephanie.com/my-special-heart/ & http://www.bobostephanie.com/my-heart-procedure-experience/) where I undergone a procedure […]

    August 1, 2016 at 10:55 am
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